Prader Willi Syndrome

• Have you ever wished you could go to a conference, but don't have the money or resources to go? Well here is a series of DVDs that captures the speakers at the International Conference in Taipei, Taiwan that took place May 20-23, 2010. To learn more about this offer click here.
   
• Did you know that in the past six years PWSA (USA) has committed over 1.2 Million Dollars to fund research?  In fact, almost every major breakthrough in PWS has been made by our PWSA (USA) scientists! And each year, YOU have an opportunity to help advance this effort by participating in the Valentine Research Campaign.  For more details and to sign up, click here.
   
• Angel Drive 2010
  It’s not too late. You can still be a 2010 Angel! Send your gift today! From all of us here at PWSA (USA) – wishing you a wonderful holiday season and the very best in 2011!
   
• National Awareness and Fundraising Campaign  PWSA (USA) is rolling out a National Awareness and Fundraising Campaign to take place in May 2011.  The event is designed to benefit local chapters and groups as well as to support work at the national level.  To learn more, go to
  [Click here]
   
• Evan Farrar, Executive Director, sends a message to families about Risk of Stomach Necrosis and Rupture.  [Click here] to read the letter.
   
• Clint Hurdle, PWSA (USA)’s National Spokesperson, named Manager of the Pittsburgh Pirates. To learn more…[click here]
   
• Prader-Willi Syndrome Association (USA) has an Adult Advisory Board made up persons with PWS.  They met October 28-29, 2010 on Lido Key . . . read more
   
• How the latest computing technology influences the lives of patients with Prader-Willi Syndrome (youtube) [click here]
   
• The collaboration of the Prader-Willi Syndrome Association ( USA), Angelman Syndrome Foundation, Inc., and the International Rett Syndrome Foundation presents “Parental Stress When Your Child Has a Developmental Disorder: Helpful Tips and Coping Strategies” and is presented by M. Paige Powell, PhD. Dr. Paige is the Coordinator, Psychology Program for Developmental Disorders Psychology Service, Texas Children’s Hospital Assistant Professor, Department of Pediatrics, Baylor College of Medicine click here to view this presentation. We want to thank the Gerald J. and Dorothy R. Friedman, New York Foundation for grant funding to PWSA (USA) that helped make this project possible.
   
• PWSA (USA) participates in the Combined Federal Campaign, and you can help! Click here for more details.
   
• PWSA (USA Announces Evan Farrar as the permanent Executive Director of the organization.  click here for more details.
   
• APX doles out $130K to local charities  Click here for details.
   
• New Clue for Understanding the Hunger of Prader-Willi Syndrome: Research Volunteers are Needed for Further Studies.  Click here for more details.
   
• PWSA (USA) Conference 2011 - click here for details!
   
• Rare Diseases Clinical Research Network (RDCRN) and other research projects need you!  Click here and participate!
   
• NIH awards $117 million for Rare Diseases Clinical Research Network including Prader-Willi syndrome research...  [click here] Participants Wanted!  [click here]
   
• Regional Focus and Support Groups in your area. [Click here] to learn more.
   
• Front Page News Archive  Items formerly on our front page that cannot be found elsewhere on our site may be kept in a news archive.